Finally back from the craziness of my summer with launching the next Series.
Kids with FASD Can Learn: 10 Things These Kids Need from Us.
Come back each day beginning tomorrow I will take 1 topic for the next 10 days.
Anny
Tuesday, August 23, 2016
Day 73: Kids with FASD Can Learn: 10 Things These Kids Need From Us
Finally back from the craziness of my summer with launching the next Series.
Kids with FASD Can Learn: 10 Things These Kids Need from Us.
Come back each day beginning tomorrow I will take 1 topic for the next 10 days.
Anny
Day 73: Kids with FASD Can Learn: 10 Things These Kids Need From Us
Finally back from the craziness of my summer with launching the next Series.
Kids with FASD Can Learn: 10 Things These Kids Need from Us.
Come back each day beginning tomorrow I will take 1 topic for the next 10 days.
Anny
Sunday, July 31, 2016
Day 50: The Lessons Stuck.
Day 50
Our daughter Detamara nearly 24 stayed home with support and dog sat her brothers two dogs and one of them a 10 month old puppy hound named Copper. Mackie just came up with his dolls toe chewed off and wanted help fixing his doll named "appointment".
She talked about not being able to leave Copper alone. He chewed up some of Mackie toys and his baby doll appointment big toe. She noted he only gets in trouble when no one else is around. She told him "no" and he wasn't able to learn and control himself without someone watching him. So she just kept him with her the rest of the time and there were no more messes or destroyed belongings.
I looked at her and told her now she knows what it is like to be a parent of a toddler or a child with FASD.
She told me, "Mom, Where do you think I learned it from! Mom you kept me from getting into trouble, teaching me right from wrong and in time I learned to be able to control myself and now I can help Mac and the dogs to keep them from getting themselves in the doghouse and timeout!"
Anny
Our daughter Detamara nearly 24 stayed home with support and dog sat her brothers two dogs and one of them a 10 month old puppy hound named Copper. Mackie just came up with his dolls toe chewed off and wanted help fixing his doll named "appointment".
She talked about not being able to leave Copper alone. He chewed up some of Mackie toys and his baby doll appointment big toe. She noted he only gets in trouble when no one else is around. She told him "no" and he wasn't able to learn and control himself without someone watching him. So she just kept him with her the rest of the time and there were no more messes or destroyed belongings.
I looked at her and told her now she knows what it is like to be a parent of a toddler or a child with FASD.
She told me, "Mom, Where do you think I learned it from! Mom you kept me from getting into trouble, teaching me right from wrong and in time I learned to be able to control myself and now I can help Mac and the dogs to keep them from getting themselves in the doghouse and timeout!"
Anny
Tuesday, July 26, 2016
Day 44: FASD No Two People Are Affected Alike
Day 44
Back after a 13 day whirlwind marathon of helping run the Noonan Syndrome Foundation Conference. My daughter Becca has Noonan Syndrome and I work another job as well as being on the NSF board and Chief Operating Officer on the Executive Leadership Team.
With having kids like mine, I wear many hats and advocate for many causes. Thank you to Jodee Kulp my partner on this 90 day campaign. We have each other backs so one of us can do what we need to and we will continue to make this happen.
Today I needed a simple post and I am learning that simple graphics with information with popping images spread awareness the best.
Today's post. No two people with FASD are affected alike.
Back after a 13 day whirlwind marathon of helping run the Noonan Syndrome Foundation Conference. My daughter Becca has Noonan Syndrome and I work another job as well as being on the NSF board and Chief Operating Officer on the Executive Leadership Team.
With having kids like mine, I wear many hats and advocate for many causes. Thank you to Jodee Kulp my partner on this 90 day campaign. We have each other backs so one of us can do what we need to and we will continue to make this happen.
Today I needed a simple post and I am learning that simple graphics with information with popping images spread awareness the best.
Today's post. No two people with FASD are affected alike.
Wednesday, July 13, 2016
Day 31: The FASD Umbrella
Today was a busy day and we are sharing a graphic to teach about the FASD umbrella!
FAS = Fetal Alcohol Syndrome
ARND = Alcohol Related Neurodevelopmental Disorder
PFAS = Partial Fetal Alcohol Syndrome
ARBD = Alcohol Related Birth Defects
ND-PAE = Neurodevelopmental Disorder-Prenatal Alcohol Exposure
To Learn more about FASD go to National Organization on Fetal Alcohol Syndrome
Mac says Thank you for learning more about the FASD's.
Anny
Tuesday, July 12, 2016
Day 30: 11,367 People Met Mac
Day 30
Mac is the face of FASD for the launch of the 90 Real People Real Lives for raising awareness for FASD. He is circulating the world for these past 30 days and his Facebook post as been picked up 11,367 times.
Mac and his little Red Shoes are traveling the world with his friends from now until September 9th which is Fetal Alcohol Awareness Day.
Let see how many people he can reach in the next 60 days! Maybe lets see if we can ad another 0 and hit an impressive 100,000 people!
Head on over to like Red Shoes Rock and then share Mackie!
Anny
Mac is the face of FASD for the launch of the 90 Real People Real Lives for raising awareness for FASD. He is circulating the world for these past 30 days and his Facebook post as been picked up 11,367 times.
Mac and his little Red Shoes are traveling the world with his friends from now until September 9th which is Fetal Alcohol Awareness Day.
Let see how many people he can reach in the next 60 days! Maybe lets see if we can ad another 0 and hit an impressive 100,000 people!
Head on over to like Red Shoes Rock and then share Mackie!
Anny
Sunday, July 10, 2016
Day 29: Mackie's Sharing 10 Things to Know About Fetal Alcohol Syndrome
Day 29 (A Day early. Therapies and Neuromuscular clinic for Mac Monday)
The Ten Things to Know About FASD Campaign.
I just finished all 10 Lesson on our 10 Things You need to Know About FASD and here is the list with the links.
#1 People with FASD have challenges due to no fault of their own. They are the innocent victims of prenatal alcohol exposure.
#2 FASD is complicated and no two people are alike. Prenatal alcohol exposure can cause damage to any system of the body. Recent medical literature reported over 400 different diagnoses and problems associated wth FAS.
#3 Most of the time FASD is invisible. People with FASD can look normal, but struggle with normal. Only 1 out of 10 will have the physical characteristics associated with prenatal alcohol exposure.
#4 Most people with FASD will have normal intelligence. Some will have high intellect and still struggle. The majority will need a circle of external support for their lifetimes.
#5 You cannot outgrow FASD. It is permanent and a life-long condition. There is no cure. It is a struggle to find diagnosis, support and help as there is no disability category where they fit in. Finding early diagnosis and intervention can help mitigate secondary mental health challenges.
#6 People with FASD can have memory and processing challenges, motor control, auditory, visual and sensory processing issues. It is important to realize their world is different than ours.
#7 The brain is complex. Just because you can say it, doesn't mean it is understood. They may need help with cognitive translation. Often times it is not they won't do it, they may need a different way to be able to achieve it.
#8 We just think beyond chronological age and meet them at their developmental, social, and emotional stages with respect. They learn well with experience in safe and fun guided steps.
#9 Persons with FASD just want to be understood, cared for, included and most of all loved like everyone else.
#10 It's 100% preventable. It is the number one cause of prenatal brain injury and lifelong learning challenges.
Thank you for taking the time to learn more about Fetal Alcohol Spectrum Disorders!
Mackie and Anny
The Ten Things to Know About FASD Campaign.
I just finished all 10 Lesson on our 10 Things You need to Know About FASD and here is the list with the links.
#1 People with FASD have challenges due to no fault of their own. They are the innocent victims of prenatal alcohol exposure.
#2 FASD is complicated and no two people are alike. Prenatal alcohol exposure can cause damage to any system of the body. Recent medical literature reported over 400 different diagnoses and problems associated wth FAS.
#3 Most of the time FASD is invisible. People with FASD can look normal, but struggle with normal. Only 1 out of 10 will have the physical characteristics associated with prenatal alcohol exposure.
#4 Most people with FASD will have normal intelligence. Some will have high intellect and still struggle. The majority will need a circle of external support for their lifetimes.
#5 You cannot outgrow FASD. It is permanent and a life-long condition. There is no cure. It is a struggle to find diagnosis, support and help as there is no disability category where they fit in. Finding early diagnosis and intervention can help mitigate secondary mental health challenges.
#6 People with FASD can have memory and processing challenges, motor control, auditory, visual and sensory processing issues. It is important to realize their world is different than ours.
#7 The brain is complex. Just because you can say it, doesn't mean it is understood. They may need help with cognitive translation. Often times it is not they won't do it, they may need a different way to be able to achieve it.
#8 We just think beyond chronological age and meet them at their developmental, social, and emotional stages with respect. They learn well with experience in safe and fun guided steps.
#9 Persons with FASD just want to be understood, cared for, included and most of all loved like everyone else.
#10 It's 100% preventable. It is the number one cause of prenatal brain injury and lifelong learning challenges.
Thank you for taking the time to learn more about Fetal Alcohol Spectrum Disorders!
Mackie and Anny
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